Isla has Acid Reflux and that in itself has been a crazy thing to deal with for me. When it started getting weird I called her pediatrician's office and they said it sounded alright and that babies spit up. Deep down I knew something was off, but within those 2 weeks or so everyone I talked too pretty much said she was fine. I guess now that I look back maybe had I been more vivid about what all she was doing I could have gotten through to them how bad it was at that point. I had done my own research and it sounded like Acid Reflux.
The pediatrician's office said her spit up sounded normal even if it did stink and started to turn bright yellow. They said as long as it wasn't shooting across the room we were fine. I had several friends disagree and without them I would have felt incredibly alone in it all. My friends gave the suggestions to burp her after every ounce, hold her upright for 30 minutes, and make sure she slept upright too. I was still worried at this point so I called the RN at the pediatrician's office. It took two days for a call back just to tell me to keep doing what I was doing with her. I had to call back to push for an answer because our RN, Melissa, was out for a few days and she does an excellent job calling back and answering questions and concerns.
We started to put her in her pack n play one night and within 40 minutes of being in it and sleeping she woke up choking. I slept on the couch that night with her in her swing because that seemed to help. I felt so sick to my stomach. I kept telling Toby over and over, "this isn't normal." She was hurting I could just tell. I didn't know how to describe it but I just knew she was hurting during eating, after eating, and in her sleep. The next morning I was changing her diaper and she spit up some and started coughing. I got more frustrated so I started praying over whether or not I should call the pediatrician's office again. I decided to wait because I felt like I was a crazy, worried mom and didn't know what I was talking about. Everyone was saying she's fine, it was just spit up, and babies spit up a lot sometimes. Within 2 hours she choked in her swing, turned red, had spit up run out of her mouth and nose, and cried inconsolably. I was terrified!
As soon as I got her calm I was on a mama bear warpath and got out my phone. It was a blessing who answered the phone that time. It was our regular RN, Melissa, and she listened as I told her that it was getting steadily worse, that it was so bad she had gotten choked and turned red. I told her there was no way that was normal and I needed something to be done about it. We needed help! She told me that they would get us in that day because Isla needed to be looked over. We made our appointment and within 3 hours we were sitting in the exam room with the Physician's Assistant.
The PA was wonderful. By the time we got called back and done with Isla's vitals it was time for her to eat. However, I waited to feed her because the PA came into the room. I thought she would need to look into Isla's mouth and throat to check for reflux. Silly me. Isla started her hungry crying and the PA asked if it was time for her to eat, and it was so she said go on ahead and feed her that it didn't make a difference.
I started feeding Isla her bottle and poor baby started up fast, crying and moving around so much. The PA asked if she'd been doing that a lot and I said, "Yes!" She told me that Isla was arching her back as the acid came back up and it was in fact hurting her. I told her that at one point I thought that movement was bad but then others convinced me it was just her fidgeting. I just spilled out everything at that point. I told her about how I thought she was hurting and that it wasn't right, and that I felt like I was crazy because everyone else around us thought it was normal. I told her I was exhausted because I was scared to go to sleep in case Isla needed me and I couldn't get to her in time. The PA told me that I wasn't crazy, that I was right and that we needed to get her on medicine. We started her on Axid that night.
The Axid did nothing, so within a week I called them and asked about it, and they upped her dosage. Still nothing, still hurting and still spitting up incredibly foul smelling and bright yellow stuff. By then her 2 month appointment was after the weekend so we were going to ask for a different medicine at that time. The PA saw us again and asked how it was going, so we told her that it wasn't getting better. Isla had started refusing to finish bottles or even to eat at times!!
We decided to put her on Prilosec and we're are praying that it works. She hasn't been on it quite 2 weeks yet, but she has had a few good days. She is finishing more bottles but is still doing a lot of screaming and crying while eating. Prilosec is a Proton Pump Inhibitor so it could take up to 2 weeks to really begin to work. If this doesn't work I don't know what the next step to take will be for us. I've heard great things about BioGaia so we'll be giving her that too.
It's rough seeing someone you love so much in pain like that and having no control over it, but I'm grateful that we have had our Lord's protection in it all.